دوره 27، شماره 1 - ( دو ماهنامه طب جنوب 1403 )                   جلد 27 شماره 1 صفحات 79-65 | برگشت به فهرست نسخه ها

XML English Abstract Print


Download citation:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:

Bagherzadeh R, Masoumi M, Daneshmand S, Mohammadpour M, Vahedparast H. The Relationship Between Care Burden of Informal Caregivers and Quality of Life in Hemodialysis Pa-tients: A Cross-Sectional Study. Iran South Med J 2024; 27 (1) :65-79
URL: http://ismj.bpums.ac.ir/article-1-1987-fa.html
باقرزاده راضیه، معصومی معصومه، دانشمند سحر، محمودپور مهدی، واحدپرست حکیمه. ارتباط بین بار مراقبتی مراقبین غیر رسمی و کیفیت زندگی بیماران همودیالیزی: یک مطالعه مقطعی. مجله طب جنوب. 1403; 27 (1) :65-79

URL: http://ismj.bpums.ac.ir/article-1-1987-fa.html


1- گروه مامایی، دانشکده پرستاری و مامایی، دانشگاه علوم پزشکی بوشهر، بوشهر، ایران
2- گروه اتاق عمل، دانشکده پیراپزشکی، دانشگاه علوم پزشکی بوشهر، بوشهر، ایران
3- گروه پرستاری، دانشکده پرستاری و مامایی، دانشگاه علوم پزشکی بوشهر، بوشهر، ایران
4- مرکز تحقیقات طب گرمسیری و عفونی خلیج‌فارس، پژوهشکده‌ علوم زیست پزشکی خلیج‌فارس، دانشگاه علوم پزشکی بوشهر، بوشهر، ایران
5- گروه پرستاری، دانشکده پرستاری و مامایی، دانشگاه علوم پزشکی بوشهر، بوشهر، ایران ، H.vahedparast@bpums.ac.ir
چکیده:   (270 مشاهده)
زمینه: بار مراقبتی مراقبین غیر رسمی علاوه بر تأثیر در کیفیت مراقبت ارائه شده توسط مراقبین بر کیفیت زندگی بیماران نیز تأثیر منفی می‌گذارد. پژوهش حاضر با هدف بررسی ارتباط بین بار مراقبتی مراقبین غیررسمی و کیفیت زندگی بیماران تحت همودیالیز انجام گرفت.
مواد و روش‌ها: این مطالعه توصیفی همبستگی در 259 زوج (بیمار همودیالیزی و مراقب غیر رسمی آن‌ها) در کلیه مراکز همودیالیز استان بوشهر در سال 1400 با استفاده از روش سرشماری انجام شد. ابزار گردآوری داده‌ها فرم اطلاعات دموگرافیک بیمار و مراقب، پرسشنامه‌های کیفیت زندگی مختص بیماران کلیوی و بار مراقبتی نواک و گست (Novak & Guest) بودند. داده‌ها با استفاده از نرم‌افزار SPSS ویرایش 19 و از طریق آمار توصیفی و تحلیلی تجزیه و تحلیل شد. سطح معنی‌داری 05�>P در نظر گرفته شد.
یافته‌ها: کیفیت زندگی بیماران و بار مراقبتی مراقبین به ترتیب 23/53±96/46 و 0/76±1/24 بود. بین بار مراقبتی مراقبین با کیفیت زندگی بیماران همودیالیزی ارتباط معنی‌دار وجود ندارد (0/05>p). از بین متغیرهای موجود ساعات مراقبت پیش بین معکوس (0/019P=) و با سواد بودن بیمار (0/05>P) پیش بین مستقیم کیفیت زندگی بیماران بود.
نتیجه‌گیری: از نتایج این مطالعه می‌توان در جهت طراحی برنامه‌های آموزشی و مشاوره‌ای به منظور افزایش سطح اطلاعات بیماران و مراقبین استفاده نمود. با توانمندسازی بیماران همودیالیزی در عملکردهای خود مراقبتی ساعات مراقبت مراقبین را کاهش داده و باعث ارتقای سلامت جسمی و روانی مراقبین شد و به تبع آن کیفیت زندگی بیماران نیز بهبود یابد.
متن کامل [PDF 503 kb]   (119 دریافت)    
نوع مطالعه: پژوهشي | موضوع مقاله: پرستاری
دریافت: 1403/2/21 | پذیرش: 1403/6/25 | انتشار: 1403/8/7

فهرست منابع
1. Mirhosseini S, Bazghaleh M, Basirinezhad MH, et al. Health-related quality of life and caregiver’s burden in pa-tients with chronic diseases: a cross-sectional study. FMPCR 2021; 23(1): 29-35. [DOI]
2. Sajadi SA, Ebadi A, Moradian ST,et al. Designing and validation of health-related quality of life inventory for fami-ly caregivers of hemodialysis patients. Int J Community Based Nurs Midwifery 2020; 8(2): 164- 176. [DOI]
3. Francis A, Harhay MN, Ong A, et al. Chronic kidney disease and the global public health agenda: an international consensus. Nat Rev Nephrol 2024; 20(7): 473-85. [DOI]
4. Moradpour A, Hadian M, Tavakkoli M. Economic evaluation of end stage renal disease treatments in Iran. CEGH 2020; 8(1): 199-204. [DOI]
5. Mohamedi S, Mosha IH. Hemodialysis Therapy Adherence and Contributing Factors among End-Stage Renal Disease Patients at Muhimbili National Hospital, Dar es Salaam, Tanzania. Kidney Dial 2022; 2(1): 123- 30. [DOI]
6. Farzi S, Farzi S, Moladoost A, et al. Caring burden and quality of life of family caregivers in patients undergoing hemodialysis: A descriptive-analytic study. Int J Commiunity Based Nurs Midwifery 2019; 7(2): 88-96. [DOI]
7. Dastyar N, Mashayekhi F, Rafati F. Caregiving burden in hemodialysis patients’ caregivers in Kerman Province: A descriptive-analytical study. J Jiroft Univ Med Sci 2020; 7(1): 323-31. [Article]
8. Huang J, Lin X, Lan F, et al. Characteristics and Factors Associated with Ability of Caregivers to Care for Hemo-dialysis Patients. Med Sci Monit 2023; 29: e940711. [DOI]
9. Jafari H, Ebrahimi A, Aghaei A, et al. The relationship between care burden and quality of life in caregivers of hemodialysis patients. BMC nephrol 2018; 19(1): 321. [DOI]
10. Hejazi SS, Hosseini M, Ebadi A, et al. Components of quality of life in hemodialysis patients from family care-givers’ perspective: a qualitative study. BMC nephrol. 2021; 22(1): 379. [DOI]
11. Mansouri S, Jalali A, Rahmati M, et al. Educational supportive group therapy and the quality of life of hemodial-ysis patients. Biopsychosoc Med 2020; 14:27. [DOI]
12. Jafari Sani F, Barkhordari-Sharifabad M, Salaree MM. Evaluation of the quality of life of caregivers(family) of patients undergoing hemodialysis. Nursing and Midwifery Journal 2022; 19(11): 920-29. (Persian) [DOI]
13. Sarizadeh M, Rafienia P, Sabahi P, et al. The effectiveness of acceptance and commitment therapy on hemo-dialysis patients’ quality of life: a randomized educational trial study. JRUMS 2018; 17(3): 241-52. (Persian) [DOI]
14. Mashayekhi F, Pilevarzadeh M, Rafati F. The assessment of caregiver burden in caregivers of hemodialysis patients. Mater sociomed 2015; 27(5): 333-6. [DOI]
15. Eckert K, Motemaden L, Alves M. Effect of hemodialysis compared with conservative management on quality of life in older adults with end-stage renal disease: systematic review. J Hosp Palliat Nurs 2018; 20(3): 279-85. [DOI]
16. Talebi M, Mokhtari Lakeh N, Rezasoltani P, et al. Caregiver Burden in Caregivers of Renal Patients under He-modialysis. JHNM 2016; 26(2): 59-68. (Persian) [DOI]
17. Chu SY, Ibrahim N, Amit N, et al. Interventions to Reduce Caregiver Burden Among Caregivers of Chronic Kid-ney Disease (CKD) Patients: A Scoping Review. SAGE Open 2023; 13(2). [DOI]
18. Chhetri SK, Baral R. Caregiver burden among caregivers of patient undergoing hemodialysis in tertiary care center: A descriptive cross-sectional study. JNMA 2020; 58(223): 148-52. [DOI]
19. Dikmen RD, Kizilarslan V, Ekinci I, et al. Caregiving Burden of Caregivers of Hemodialysis Patients and Related Factors. J Basic Clin Health Sci 2023; 7(1): 418-25. [DOI]
20. Nikmanesh Z, Shahinfar M. The role of caregiver burden in quality of life and perception of patients with chron-ic kidney failure on hemodialysis. Ann Mil Health Sci Res 2016; 14(3): e11465. [DOI]
21. Novak M, Guest C. Application of a multidimensional caregiver burden inventory. Gerontologist 1989; 29(6): 798-803. [DOI]
22. Abbasi A, Shamsizadeh M, Asayesh H, et al. The relationship between caregiver burden with coping strategies in Family caregivers of cancer patients. IJPN 2013; 1(3): 62-71. (Persian) [Article]
23. Hays RD, Kallich JD, Mapes DL, et al. Development of the kidney disease quality of life (KDQOL TM) instrument. Qual Life Res 1994; 3(5): 329-38. [DOI]
24. Yekaninejad M, Mohammadi Z, Akaberi A et al. Validity and reliability of the kidney disease quality of lifeshort form (KDQOL-SF 1.3) in iranian patients. North Khorasan Univ Med Sci 2012; 4(2): 261-272. (Persian) [Article]
25. Ware J, Sherbourne C. The MOS 36-Item short-form health survey (SF-36). I. Conceptual Framework and Item Selection. Med Care 1992; 30(6): 473-83. [Article]
26. Pio TMT, Prihanto JB, Jahan Y, et al. Assessing burden, anxiety, depression, and quality of life among caregiv-ers of hemodialysis patients in indonesia: A cross-sectional study. Int J Environ Res Public Health 2022; 19(8): 4544. [DOI]
27. Rioux JP, Narayanan R, Chan CT. Caregiver burden among nocturnal home hemodialysis patients. Hemodial Int 2012; 16(2): 214-9. [DOI]
28. Usman Shah HB, Atif I, Rashid F, et al. Assessment of caregiver burden of patients receiving dialysis treatment in Rawalpindi. J Pak Med Assoc 2017; 67(10): 1498-501. [Article]
29. Jadhav BS, Dhavale HS, Dere SS, et al. Psychiatric morbidity, quality of life and caregiver burden in patients undergoing hemodialysis. Med J Dr D Y Patil Univ 2014; 7(6): 722-7. [Article]
30. Farhadi A, Noroozian M, Mohammadi F, et al. Positive experiences of caregiving in family caregivers of older adults with dementia: a content analysis study. Iran South Med J 2018; 21(4): 319-334. (Persian). [Article]
31. Alshammari B, Noble H, McAneney H, et al. Caregiver Burden in Informal Caregivers of Patients in Saudi Arabia Receiving Hemodialysis: A Mixed-Methods Study. Healthc (Basel) 2023; 11(3): 366. [DOI]
32. Talebianpour H, Talebianpour E, Sadeghkhani O, et al. Study of the Quality of Life in Patients with Chronic Renal Failure Treated with Hemodialysis. J Health Based Research 2019; 4(4): 399-410. (Persian) [Article]
33. Arzhangi R, Ghasemi S, Mohammadi S, et al. Investigating the relationship between health literacy and quality of life on hemodialysis patients in selected medical centers under the auspices of Ardabil University of Medical Sciences. IJRN 2022; 8(2): 21-31. (Persian) [Article]
34. Levendoğlu F, Altintepe L, Okudan N, et al. A twelve week exercise program improves the psychological status, quality of life and work capacity in hemodialysis patients. J Nephrol 2004; 17(6): 826-32. [Article]
35. Oliveira AP, Schmidt DB, Amatneeks TM, et al. Quality of life in hemodialysis patients and the relationship with mortality, hospitalizations and poor treatment adherence. J Bras Nefrol 2016; 38(4): 411-20. [DOI]
36. Ishiwatari A, Yamamoto S, Fukuma S, et al. Changes in quality of life in older hemodialysis patients: a cohort study on dialysis outcomes and practice patterns. Am J Nephrol 2020; 51(8): 650-8. [DOI]
37. Adili D, Dehghani-Arani F. The Relationship between Caregiver's Burden and Patient's Quality of Life in Women with Breast Cancer. J Res Psychol Health 2018; 12(2): 30-9. [Article]
38. Bidwell JT, Lyons KS, Lee CS. Caregiver well-being and patient outcomes in heart failure: a meta-analysis. J Cardiovasc Nurs 2017; 32(4): 372-82. [DOI]
39. Corallo F, De Cola MC, Lo Buono V, et al. Observational study of quality of life of P arkinson's patients and their caregivers. Psychogeriatrics 2017; 17(2): 97- 102. [DOI]
40. Borges EL, Franceschini J, Costa LHD, et al. Family caregiver burden: the burden of caring for lung cancer pa-tients according to the cancer stage and patient quality of life. J Bras Pneumol 2017; 43(1): 18-23. [DOI]
41. Nuttall AK, Thakkar KN, Luo X, et al. Longitudinal associations of family burden and patient quality of life in the context of first-episode schizophrenia in the RAISE-ETP study. Psychiatry Res 2019; 276: 60-8. [DOI]
42. Srivastava G, Tripathi RK, Tiwari SC, et al. Caregiver burden and quality of life of key caregivers of patients with dementia. Indian J Psychol Med 2016; 38(2): 133-6. [DOI]
43. Rahmani F, Roshangar F, Gholizadeh L, et al. Caregiver burden and the associated factors in the family care-givers of patients with schizophrenia. Nurs Open 2022; 9(4): 1995-2002. [DOI]
44. Moridi R, Soltani R, Khorsandi M, et al. Evaluation of quality of life and its effective factors in patients with chronic renal failure undergoing hemodialysis in Borujerd hospitals in 2021. Daneshvar Med 2022; 30(3): 23-33. (persian) [DOI]
45. Barzegar H, Jafari H, Charati JY,et al. Relationship between duration of dialysis and quality of life in hemodi-alysis patients. Iran J Psychiatry Behav Sci 2017; 11(4): e6409. [DOI]
46. Al Salmi I, Kamble P, Lazarus ER, et al. Kidney disease-specific quality of life among patients on hemodialysis. Int J Nephrol 2021; 2021: 8876559. [DOI]
47. Moeini V, Shiri P, Akhlaghi M. Study Quality of life and related factors in hemodialysis patients referred to teaching hospitals in Zanjan. J Geriatr Nurs 2015; 1(4): 49-59. (persian) [Article]
48. Koopman E, Heemskerk M, van der Beek AJ, et al. Factors associated with caregiver burden among adult (19–64 years) informal caregivers – An analysis from Dutch Municipal Health Service data. Health Soc Care Com-munity 2020; 28(5): 1578-89. [DOI]
49. Prevo L, Hajema K, Linssen E, et al. Population characteristics and needs of informal caregivers associated with the risk of perceiving a high burden: a cross-sectional study. INQUIRY: J Health Care Organiz, Provis, Financ 2018; 55. [DOI]
50. Kenny P, King MT, Hall J. The physical functioning and mental health of informal carers: evidence of care‐giving impacts from an Australian population‐ based cohort. Health Soc Care Community 2014; 22(6): 646-59. [DOI]
51. Buchanan RJ, Radin D, Huang C. Burden among male caregivers assisting people with multiple sclerosis. Gend Med 2010; 7(6): 637-46. [DOI]

ارسال پیام به نویسنده مسئول


بازنشر اطلاعات
Creative Commons License این مقاله تحت شرایط Creative Commons Attribution-NonCommercial 4.0 International License قابل بازنشر است.

کلیه حقوق این وب سایت متعلق به مجله طب جنوب می‌باشد.

طراحی و برنامه نویسی: یکتاوب افزار شرق

© 2024 CC BY-NC 4.0 | Iranian South Medical Journal

Designed & Developed by: Yektaweb