Volume 21, Issue 4 (Iranian South Medical Journal 2018)                   Iran South Med J 2018, 21(4): 319-334 | Back to browse issues page

XML Persian Abstract Print


Download citation:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:

Farhadi A, Noroozian M, Mohammadi F, Foroughan M, Rassouli M, Sadeghmoghadam L et al . Positive Experiences of Caregiving in Family Caregivers of Older Adults with Dementia: a Content Analysis Study. Iran South Med J 2018; 21 (4) :319-334
URL: http://ismj.bpums.ac.ir/article-1-942-en.html
1- Department of Nursing, School of Nursing and Midwifery, Bushehr university of medical sciences, Bushehr, Iran
2- Memory and Behavioral Neurology Division, School of Medicine,Tehran University of Medical Sciences, Tehran, Iran
3- Iranian Research Center on Aging, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran
4- Iranian Research Center on Aging, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran , m_foroughan@yahoo.com
5- Department of Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran
6- Department of Nursing, School of Nursing and Midwifery, Gonabad University of Medical Sciences, Gonabad, Iran
7- Department of Nursing, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran
Abstract:   (5610 Views)
Background: The growing trend of aging population and age-related diseases, such as dementia, stresses the importance of addressing caregiving. One of the notable issues in this area is the positive appraisal of caregivers of their cares, therefore, the present study aimed to explain the positive experiences of family caregivers of older adults with dementia in Iran.
Materials and methods: This qualitative study used conventional content analysis approach. Twelve family caregivers of older adults with dementia were selected through purposeful sampling from among those attending Memory Clinic of Yadman and Alzheimer's Association of Iran in Tehran. and participated in semi-structured interviews. Data were analyzed simultaneously with data collection.
Results: Data analysis led to the emergence of three main categories of satisfaction with care, personal growth and caregiving gains along with nine subcategories, which show the positive appraisal of caregivers of their caregiving.
Conclusion: According to the results of this study, although the results of our study are somewhat similar to those of the western studies, the appraisal of family caregivers of their care has unique dimensions specific to Iranian culture. These positive appraisals can be used to design specific interventions to reduce the negative outcomes of caregiving.
Full-Text [PDF 939 kb]   (2324 Downloads)    
Type of Study: Original | Subject: Nursing
Received: 2018/01/6 | Accepted: 2018/03/11 | Published: 2018/09/4

References
1. Hebert LE, Weuve J, Scherr PA, et al. Alzheimer disease in the United States (2010– 2050) estimated using the 2010 census. Neurology 2013; 80(19): 1778-83.
2. Kalaria RN, Maestre GE, Arizaga R, et al. Alzheimer's disease and vascular dementia in developing countries: prevalence, management, and risk factors. Lancet Neurol 2008; 7(9): 812-26.
3. Thies W, Bleiler L. 2013 Alzheimer's disease facts and figures Alzheimer's Association. Alzheimers Dement 2013; 9(2): 208-45.
4. Ferri CP, Prince M, Brayne C, et al. Global prevalence of dementia: a Delphi consensus study. Lancet 2006; 366 (9503): 2112-7.
5. Prince M, Bryce R, Albanese E, et al. The global prevalence of dementia: A systematic review and metaanalysis. Alzheimers Dement 2013; 9(1): 75-63.e2.
6. Yang S. A mixed methods study on the needs of Korean families in the intensive care unit. Aust J Adv Nurs 2008; 25(4): 79-86.
7. Gates KM. The experience of caring for a loved one: a phenomenological study. Nurs Sci Q 2000; 13(1): 54-9.
8. McCleary L, Blain J. Cultural values and family caregiving for persons with dementia. Indian Journal of Gerontology 2013; 27(1): 201-178.
9. Subgranon R, Lund DA. Maintaining caregiving at home: a culturally sensitive grounded theory of providing care in Thailand. J Transcult Nurs 2000; 11(3): 166-73.
10. Folkman S, Lazarus RS, Gruen RJ, et al. Appraisal, coping, health status, and psychological symptoms. Journal of personality and social psychology 1986; 50(3): 571.
11. Lawton MP, Kleban MH, Moss M, et al. Measuring caregiving appraisal. J Gerontol 1989; 44(3): 71-61.
12. Morano CL. Appraisal and coping: Moderators or mediators of stress in Alzheimer's disease caregivers?. Soc Work Res 2003; 27(2): 116-28.
13. Hilgeman MM, Allen RS, DeCoster J, et al. Positive aspects of caregiving as a moderator of treatment outcome over 12 months. Psychol Aging 2007; 22(2): 361-71.
14. Tarlow BJ, Wisniewski SR, Belle SH, et al. Positive Aspects of Caregiving Contributions of the REACH Project to the development of new measures for Alzheimer’s caregiving. Research on aging 2004; 26(4): 429-53.
15. Lloyd J, Patterson T, Muers J. The positive aspects of caregiving in dementia: A critical review of the qualitative literature. Dementia 2016; 15(6): 1534-61.
16. Carbonneau H, Caron C, Desrosiers J. Development of a conceptual framework of positive aspects of caregiving in dementia. Dementia 2010; 9(3): 327-53.
17. Cohen CA, Colantonio A, Vernich L. Positive aspects of caregiving: rounding out the caregiver experience. Int J Geriatr Psychiatry 2002; 17(2): 184-8.
18. Peacock S, Forbes D, Markle-Reid M, et al. The Positive Aspects of the Caregiving Journey With Dementia: Using a Strengths-Based Perspective to Reveal Opportunities. J Appl Gerontol 2009; 29(5): 640-59.
19. Navab E, Negarandeh R, Peyrovi H. Lived experiences of Iranian family member caregivers of persons with Alzheimer’s disease: caring as 'captured in the whirlpool of time'. J Clin Nurs. 2012; 21(7‐8): 1078-86.
20. Lee J, Friedmann E, Picot SJ, et al. Korean version of the revised caregiving appraisal scale: a translation and validation study. J Adv Nurs 2007; 59(4): 407-15.
21. Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res 2005; 15(9): 1277-78.
22. Lincoln YS, Guba EG. Naturalistic Inquiry. Beverly Hills, CA: Sage Publications, 1985:105-117.
23. Hogan NS, Schmidt LA. Testing the grief to personal growth model using structural equation modeling. Death Stud 2002; 26(8): 615-34.
24. Butcher HK, Holkup PA, Buckwalter KC. The experience of caring for a family member with Alzheimer’s disease. West J Nurs Res 2001; 23(1): 33-55.
25. Farran CJ, Keane-Hagerty E, Salloway S, et al. Finding meaning: An alternative paradigm for Alzheimer's disease family caregivers. Gerontologist 1991; 31(4): 483-9.
26. Bavishi S. Exploring the experiences of Indian Gujarati people in the London area supporting a person with dementia [Dissertation]: University of East London, 2013.
27. Kramer BJ. Gain in the caregiving experience: Where are we? What next?. Gerontologist 1997; 37(2): 218-232.
28. Leipold B, Schacke C, Zank S. Personal growth and cognitive complexity in caregivers of patients with dementia. Eur J Ageing 2008; 5(3): 203-14.
29. Navab E, Negarandeh R, Peyrovi H. Lived experiences of Iranian family member caregivers of persons with Alzheimer’s disease: caring as ‘captured in the whirlpool of time’. Journal of clinical nursing. 2012; 21(7‐8): 1078-1086.
30. Netto NR, Jenny GYN, Philip YLK. Growing and gaining through caring for a loved one with dementia. Dementia 2009; 8(2): 245-61.
31. Sakurai N. The moderating effects of positive appraisal on the burden of family caregivers of older people. Shinrigaku kenkyu 1999; 70(3): 203-10.
32. Yamamoto‐Mitani N, Ishigaki K, Kawahara‐ Maekawa N, et al. Factors of positive appraisal of care among Japanese family caregivers of older adults. Res Nurs Health 2003; 26(5): 337-50.
33. Yamamoto-Mitani N, Sugishita C, Ishigaki K, et al. Development of instruments to measure appraisal of care among Japanese family caregivers of the elderly. Sch Inq Nurs Pract 2001; 15(2): 113-35.
34. Farran CJ, Paun O, Elliott MH. Spirituality in multicultural caregivers of persons with dementia. Dementia 2003; 2(3): 353-77.
35. Kaye J, Robinson KM. Spirituality among caregivers. Image: The Journal of Nursing Scholarship, 1994; 26(3): 218-21.
36. Wilks SE, Vonk ME. Private prayer among Alzheimer's caregivers: mediating burden and resiliency. J Gerontol Soc Work 2008; 50(3-4): 113-31.
37. Tanyi RA. Towards clarification of the meaning of spirituality. J Adv Nurs 2002; 39(5): 500-9.
38. Pearlin LI, Mullan JT, Semple SJ, et al. Caregiving and the stress process: An overview of concepts and their measures. Gerontologist 1990; 30(5): 583-94.
39. Kinney JM, Stephens MAP. Hassles and uplifts of giving care to a family member with dementia. Psychol Aging 1989; 4(4): 402-8.
40. Lawton MP, Moss M, Hoffman C, et al. Two transitions in daughters' caregiving careers. Gerontologist 2000; 40(4): 437-48.
41. Noonan AE, Tennstedt SL, Rebelsky FG. Making the best of it: Themes of meaning among informal caregivers to the elderly. J Aging Stud 1996; 10(4): 313-27.
42. Kate N, Grover S, Kulhara P, et al. Scale for positive aspects of caregiving experience: development, reliability, and factor structure. East Asian Arch Psychiatry 2012; 22(2): 62-9.
43. Wassman ME. The Experiences of Caregivers Caring for Loved Ones with Dementia[Dissertation]. University of St. Thomas, 2012.
44. Shim B. Finding Meaning in the Dementia Caregiving Relationship[Dissertation]. Duke University, 2011.
45. Wallhagen MI, Yamamoto-Mitani N. The meaning of family caregiving in Japan and the United States: a qualitative comparative study. J Transcult Nurs 2006; 17(1): 65-73.
46. Lee J, Yoo J-S, Kim T-H, et al. Development and Validation of a Scale for the End of Life Caregiving Appraisal. Asian Nurs Res 2010; 4(1): 1-9.
47. Nijboer C, Triemstra M, Tempelaar R, et al. Measuring both negative and positive reactions to giving care to cancer patients: psychometric qualities of the Caregiver Reaction Assessment (CRA). Soc Sci Med 1999; 48(9): 1259-69.
48. Upton D, Upton P, Alexander R. The complexity of caring (Part 2): Moderators of detrimental health and well-being outcomes for caregivers of people with chronic wounds. Wound Practice & Research: Journal of the Australian Wound Management Association 2015; 23(3): 110-14.

Send email to the article author


Rights and Permissions
Creative Commons License This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

© 2024 CC BY-NC 4.0 | Iranian South Medical Journal

Designed & Developed by: Yektaweb